Manages and evaluates Quality Improvement/Quality Assurance for statewide programs under the Office of Public Health (OPH) Bureau of Family Health, the implementation of the Louisiana Sickle Cell Disease Registry.

Quality Improvement (QI) & Assurance:

• Develops and implements QI plans and incorporates QI practices with BFH clinical service programs.
• Develops QI measures with all clinical service programs.
• Leads QI initiatives, provides technical assistance for QI projects with internal and external partners, and collaborates with other programs on QI projects with shared goals.

SCD Registry Management:

• Convenes and facilitates meetings of internal and external groups related to the SCD registry.
• Establishes and implements a process for routinely reviewing and updating SCD registry rules.
• Serves as the subject matter expert for legislative matters related to the SCD registry, including tracking legislative implementation and responding to legislative requests.
• Coordinates with the BFH SCD registry coordination team as needed for visibility and to avoid duplication of efforts.

Funding and Contracts:

• Identifies grant and funding opportunities to support and sustain the SCD registry.
• Manages the grant application process, including grant writing and budget development.
• Manages contracts, memoranda of understanding, and data sharing agreements related to the SCD registry.

Reporting and Data Products:

• Develops and produces reports, data products, public-facing materials, and presentations.
• Ensures mandated data reports are completed timely and accurately.
• Develops and runs program reports on a defined schedule.
• Runs ad-hoc reports for clinical programs.
• Develops, assesses, and/or implements data capture and reporting systems for internal and external partners.
• Develops and maintains data products, annual reports, website content, talking points, white papers, and other public facing materials related to the activities and findings from the SCD registry in coordination with the SCD registry epidemiologist and the BFH communications staff.
• Performs and assists with program evaluations, cost analyses, and other in-depth reports as identified.
• Assists programs in building evaluation measures into sub recipient contracts.

Clinical Services Oversight:

• Ensures clinical services meet best practices and disseminates results to responsible parties.
• Ensures accuracy of clinical staff time-coding.
• Ensures appropriate reimbursement is captured through billing and coding practices.

Stakeholder Communication:

• Updates stakeholders on the status of the SCD registry, including the Louisiana Sickle Cell Commission, the Louisiana Rare Diseases Advisory Council, regional Sickle Cell foundation leadership, legislative champions, and LDH leadership.

Technical Assistance and Systems:

• Identifies and participates in local, state, and national webinars, trainings, and technical assistance opportunities and participates in workgroups, committees, and team meetings to provide technical assistance as identified.
• Provides input during acquisition or implementation of new software and systems; including but not limited to OPH Electronic Health Records (EHR), Genetics/Children’s Special Health Services social services software, and cloud databases.
• Provides technical assistance to other programs outside of clinical services, as needed.
• Assists BFH staff members with EHR form and report building.
• Other tasks as assigned.